OJN  Vol.1 No.2 , September 2011
Men with prostate cancer and the accessibility to information—a literature review
ABSTRACT
Objective: To explore possible consequences of short stays in hospitals, as these short contacts reduce the patients’ time for information and support. Method: A literature survey was carried out to get an insight in possible consequences by summarizing the state of knowledge on how men with prostate cancer undergoing prostatec-tomy surgery experience their contacts with the healthcare professionals. Results: A consequence is that often men with prostate cancer, treated with prostatectomy surgery, do not receive the individualized support, infor-mation, and dialogue they need, which leads to feelings of uncertainty, insecurity, and loss of control. The men use the Internet in their search for information and support, which makes them able to stay in control and be active, responsible partners in their own course of treatment. Conclusion: For men to feel secure and certain the accessibility of the healthcare professionals and the healthcare professionals’ ability to individualize information and support are important aspects. Practice Implications: It is relevant to provide male cancer patients with tools that can underpin their contact to the healthcare professionals. Utilizing Web 2.0 technologies, Internet based tools can support exchange-ability, towards dialogue-based contacts, between men with prostate cancer and healthcare professionals.

Cite this paper
nullBjørnes, C. , Nøhr, C. , Delmar, C. and Laursen, B. (2011) Men with prostate cancer and the accessibility to information—a literature review. Open Journal of Nursing, 1, 15-25. doi: 10.4236/ojn.2011.12003.
References
[1]   Ordbogen.com. Ordbogen.com. Danmarks st?rste online ordbog (The large online dictionary in Denmark). (2011) Retrieved from http://www.ordbogen.com/. Ref Type: Computer Program

[2]   Marx, C.I., Rasmussen, T., Jakobsen, D.H., Ottosen, C., Lundvall, .L. and Ottesen, B.S. et al. (2006) Accelerated course after operation for ovarian cancer. Ugeskrift for L?ger, 168, 1533-1536.

[3]   Husted, H., Hansen, H.C., Holm, G., Bach-Dal, C., Rud, K. and Andersen, L.K. et al. (2006) Accelerated versus conventional hospital stay in total hip and knee arthroplasty III: patient satisfaction. Ugeskrift for L?ger, 168, 2148-2151.

[4]   Kehlet, H. (2001) Accelererede operationsforl?b. (Accelerated surgical stay programs—a professional and adm- inistrative challenge). Ugeskrift for L?ger, 163, 420-424.

[5]   Wagner, L., Carlslund, A.M., Moller, C. and Ottesen, B. (2004) Patient and staff (doctors and nurses) experiences of abdominal hysterectomy in accelerated recovery programme. A qualitative study. Danish Medical Bulletin, 51, 418-421.

[6]   Norlyk, A. (2008) The experience of fast track postoperative rehabilitation regimen: The patients’ perspective. Kli- nisk Sygepleje, 22, 53-63.

[7]   Cancerregisteret, (2009) Cancer Register 2009. Sundhe- dsstyrelsen, National Board of Health.

[8]   Litwin, M.S., Shpall, A.I. and Dorey, F. (1997) Patient sa- tisfaction with short stays for radical prostatectomy. Ur- ology,49, 898-905. doi:org/10.1016/S0090-4295(97)00103-9

[9]   Burt, J., Caelli, K., Moore, K. and Anderson, M. (2005) Radical prostatectomy: men’s experiences and postoperative needs. Journal of Clinical Nursing, 14, 883-890. doi:org/10.1111/j.1365-2702.2005.01123.x

[10]   Butler, L., Downe-Wamboldt, B., Marsh, S., Bell, D. and Jarvi, K. (2001) Quality of life post radical prostatectomy: a male perspective. Urology Nursing, 21, 283-288.

[11]   Coreil, J. and Behal, R. (1999) Man to Man prostate cancer support groups. Cancer Practice, 7, 122-129. doi:org/10.1046/j.1523-5394.1999.07307.x

[12]   Maliski, S.L., Heilemann, M.V. and McCorkle, R. (2001) Mastery of postprostatectomy incontinence and impoten- ce: his work, her work, our work. Oncology Nursing Forum, 28, 985-992.

[13]   Milne, J.L., Spiers, J.A. and Moore, K.N. (2007) Men’s experiences following laparoscopic radical prostatectomy: A qualitative descriptive study. International Journal of Nursing Studies, 45, 765-774.

[14]   Powel, L.L. and Clark, J.A. (2005) The value of the marginalia as an adjunct to structured questionnaires: experiences of men after prostate cancer surgery. Quality of life research: An International Journal of quality of life aspects of treatment, care and rehabilitation, 14, 827-835.

[15]   Kirsh EJ, Worwag EM, Sinner M, Chodak GW (2000) Using outcome data and patient satisfaction surveys to develop policies regarding minimum length of hospitalization after radical prostatectomy. Urology, 56, 101-106. doi:org/10.1016/S0090-4295(00)00594-X

[16]   Klein, E.A., Grass, J.A., Calabrese, D.A., Kay, R.A, Sargeant, W. and O'Hara, J.F. (1996) Maintaining quality of care and patient satisfaction with radical prostatectomy in the era of cost containment. Urology, 48, 269-276. doi:org/10.1016/S0090-4295(96)00160-4

[17]   Jakobsson, L. (2002) Indwelling catheter treatment and health-related quality of life in men with prostate cancer in comparison with men with benign prostatic hyperplasia. Scandinavian Journal of Caring Sciences, 16, 264-271. doi:org/10.1046/j.1471-6712.2002.00096.x

[18]   Davison, B.J., Moore, K.N., MacMillan, H., Bisaillon, A., Wiens, K. (2004) Patient evaluation of a discharge program following a radical prostatectomy. Urology Nursing, 24, 483-489.

[19]   Gray, R.E., Fitch, M.I., Phillips, C., Labrecque, M., Klotz, L. (1999) Presurgery experiences of prostate cancer patients and their spouses. Cancer Practice, 7, 130-135. doi:org/10.1046/j.1523-5394.1999.07308.x

[20]   Harden, J., Schafenacker, A., Northouse, L., Mood, D., Smi- th, D. and Pienta, K. et al. (2002) Couples’ experiences with prostate cancer: focus group research. Oncology Nursing Forum, 29, 701-709. doi:org/10.1188/02.ONF.701-709

[21]   Hedestig, O., Sandman, P.O., Tomic, R. and Widmark, A. (2005) Living after radical prostatectomy for localized pros- tate cancer: a qualitative analysis of patient narratives. Acta Oncologica, 44, 679-686. doi:org/10.1080/02841860500326000

[22]   Jakobsson, L., Hallberg, I.R. and Loven, L. (1997) Met and unmet nursing care needs in men with prostate cancer. An explorative study. Part II. European Journal of Cancer Care, 6, 117-123. doi:org/10.1046/j.1365-2354.1997.00020.x

[23]   Moore, K.N. and Estey, A. (1999) The early post-operative concerns of men after radical prostatectomy. Journal of Advanced Nursing, 29, 1121-1129. doi:org/10.1046/j.1365-2648.1999.00995.x

[24]   Phillips, C., Gray, R.E., Fitch, M.I., Labrecque, M., Fergus, K. and Klotz, L. (2000) Early postsurgery experience of prostate cancer patients and spouses. Cancer Practice, 8, 165-171. doi:org/10.1046/j.1523-5394.2000.84009.x

[25]   Rondorf-Klym, L.M. and Colling, J. (2003) Quality of life after radical prostatectomy. Oncology Nursing Forum, 30, E24-E32. doi:org/10.1188/03.ONF.E24-E32

[26]   Boberg, E.W., Gustafson, D.H., Hawkins, R.P., Offord, K.P., Koch, C., Wen, K.Y. et al. (2003) Assessing the unmet in- formation, support and care delivery needs of men with prostate cancer. Patient Education and Counselling, 49, 233-242. doi:org/10.1016/S0738-3991(02)00183-0

[27]   Iyigun, E., Ayhan, H. and Tastan, S. (2009) Perceptions and experiences after radical prostatectomy in Turkish men: A descriptive qualitative study. Applied Nursing Research, 24, 101-109. doi:org/10.1016/j.apnr.2009.04.002

[28]   Sinfield, P., Baker, R., Agarwal, S. and Tarrant, C. (2008) Patient-centred care: What are the experiences of prostate cancer patients and their partners? Patient Education and Counselling, 73, 91-96. doi:org/10.1016/j.pec.2008.05.001

[29]   Hedestig, O. (2006) Att leva med lokaliserad prostatacancer. “Oss m?n emellan”. (Living with localised prostate cancer. between men). Department of Radiation Sciences, Oncology, and Department of Nursing, Medical Faculty, Umeaa University, Sweden.

[30]   Smith, D.P., Supramaniam, R., King, M.T., Ward, J., Be- rry, M. and Armstrong, B.K. (2007) Age, health, and edu- cation determine supportive care needs of men younger than 70 years with prostate cancer. Journal of Clinical Oncology: Official Journal of the American Society of Cli- nical Oncology, 25, 2560-2566.

[31]   Davison, B.J., Keyes, M., Elliott, S., Berkowitz, J. and Goldenberg, S.L. (2004) Preferences for sexual infor- mation resources in patients treated for early-stage prostate cancer with either radical prostatectomy or brachytherapy. British Association of Urological Surgeons, 93, 965-969.

[32]   Dickerson, S.S., Reinhart, A., Boemhke, M. and Akhu-Zaheya, L. (2010) Cancer as a problem to be solved: internet use and provider communication by men with cancer. Computers, Informatics, Nursing: CIN, Epub ahead of print Oct 21.

[33]   Nagler, R.H., Romantan, A., Kelly, B.J., Stevens, R.S. and Gray, S.W., et al. (2010) How Do Cancer Patients Navigate the Public Information Environment? Understanding Patterns and Motivations for Movement Among Information Sources. Journal of Cancer Education: The Official Journal of the American Association for Cancer Education, 360-370.

[34]   Pautler, S.E., Tan, J.K., Dugas, G.R., Pus, N., Ferri, M. and Hardie, W.R. et al. (2001) Use of the internet for self- education by patients with prostate cancer. Urology, 57, 230-233. doi:org/10.1016/S0090-4295(00)01012-8

[35]   Pinnock, C.B. and Jones, C. (2003) Meeting the infor- mation needs of Australian men with prostate cancer by way of the internet. Urology, 61, 1198-1203. doi:org/10.1016/S0090-4295(03)00016-5

[36]   Ramsey, S.D., Zeliadt, S.B., Neeraj, K.A. and Arnold, L.P., et al. (2009) Access to information sources and treatment considerations among men with local stage prostate cancer. Urology, 74, 509-515.

[37]   Rozmovits, L. and Ziebland, S. (2004) What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs. Patient Educa- tion and Counselling, 53, 57-64. doi:org/10.1016/S0738-3991(03)00116-2

[38]   Poll-Franse, L.V.V.D. and Eenbergen, V.M.C.H.J. (2008) Internet use by cancer survivors: current use and future wishes. Support Care Cancer, 16, 1189-1195. doi:org/10.1007/s00520-008-0419-z

[39]   Ziebland, S. (2004) The importance of being expert: the quest for cancer information on the Internet. Social Scien- ce & Medicine, 59, 1783-1793. doi:org/10.1016/j.socscimed.2004.02.019

[40]   Buntrock, S., Hopfgarten, T., Adolfsson, J., Onelo, E. and Steineck, G. (2007) The Internet and prostate cancer patients. Searching for and finding information. Scandi- na- vian Journal of Urology and Nephrology, 41, 367-374. doi:org/10.1080/00365590701303827

[41]   Gooden, R.J. and Winefield, H.R. (2007) Breast and pros- tate cancer online discussion boards: a thematic ana- lysis of gender differences and similarities. Journal of Health Psychology, 12, 103-114. doi:org/10.1177/1359105307071744

[42]   Huber, J., Ihrig, A. and Peters, T., et al. (2010) Decision- making in localized prostate cancer: lessons learned from an online support group. BJU International, Epub ahead of print.

[43]   Klemm, P., Hurst, M., Dearholt, S.L. and Trone, S.R. (1999) Gender differences on Internet cancer support gr- oups. Computers in Nursing, 17, 65-72.

[44]   Owen, J.E., Klapow, J.C., Roth, D.L. and Tucker, D.C. (2004) Use of the internet for information and support: disclosure among persons with breast and prostate cancer. Journal of Behavioural Medicine, 27, 491-505. doi:org/10.1023/B:JOBM.0000047612.81370.f7

[45]   Seale, C., Ziebland, S. and Charteris-Black, J. (2006) Gender, cancer experience and internet use: a comparative keyword analysis of interviews and online cancer support groups. Social Science & Medicine, 62, 2577-2590. doi:org/10.1016/j.socscimed.2005.11.016

[46]   Sullivan, C.F. (2003) Gendered cybersupport: a thematic analysis of two online cancer support groups. Journal of Health Psychology, 8, 83-103. doi:org/10.1177/1359105303008001446

[47]   Broom, A. (2005) The impact of internet use on disease experience and the doctor-patient relationship. Qualitative Health Research, 15, 325-345. doi:org/10.1177/1049732304272916

[48]   Shaha, M., Cox, C.L., Talman, K. and Kelly, D. (2008) Uncertainty in breast, prostate, and colorectal cancer: imp- lications for supportive care. Journal of Nursing Sch- olar- ship, 40, 60-67. doi:org/10.1111/j.1547-5069.2007.00207.x

[49]   Berglund, G., Petersson, L.M., Eriksson, K.R. and Hagg- man, M. (2003) “Between men”: patient perceptions and priorities in a rehabilitation program for men with pros- tate cancer. Patient Education and Counselling, 49, 285-292. doi:org/10.1016/S0738-3991(02)00186-6

[50]   Sharpley, C.F. and Christie, D.R. (2007) Patient informa- tion preferences among breast and prostate cancer patients. Australasian Radiology, 51, 154-158

[51]   Agger, N.P. and ?lgod, J. (2001) M?nd og kr?ft. An- befalinger og handlingskatalog til alle der arbejder med mandlige kr?ftpatienter. Men and Cancer. Recommendations and Catalogue of Actions for Professionals Work- ing with Male Cancerpatients, Kr?ftens Bek?mpelse, the Danish cancer society.

[52]   Agger, N.P. (2002) M?nd. (Men). Mennesker Med Kr?ft. (People with Cancer), Copenhagen, Munksgaard.

[53]   Joergensen, S.E. (1999) M?nd med kr?ft-en interview unders?gelse, Men with Cancer—A Interview Study, the Danish cancer society.

[54]   Johnsen, A.T. (2006) Kr?ftpatientens verden-en unders?gelse af, hvilke problemer danske kr?ftpatienter oplever. Litteraturgennemgang og interviews. (The world of a can- cer patient—a survey on problems experienced by Danish cancer patients. A Survey of the Literature and Inte- rviews, bispebjerg hospital.

[55]   Olsen, H., Gram, J. and Madsen, S.A. (2007) Uddannelse i kommunikation og dialog med m?nd. Kompendium med fokus p? m?nds sundhed og sygdomme. (Instruction in communication and dialogue with men. A Compendium with Focus on Men in Health and Illness, Men’s Health Week.

[56]   ?lgod, J. (1999) Breve fra m?nd med kr?ft. Letters from Men with Cancer, the Danish cancer society.

[57]   Simonsen, S.S. (2006) M?nd, sundhed og sygdom-Ron- kedorf?nomenet. Men, Health and Illness.

[58]   Pai, H.H. and Lau, F. (2005) Web-based electronic health information systems for prostate cancer patients. The Canadian Journal of Urology, 12, 2700-2709

[59]   Cathala, N., Brillat, F., Mombet, A., Lobel, E., Prapotnich, D. and Alexandre, L. et al. (2003) Patient followup after radical prostatectomy by Internet medical file. The Jour- nal of Urology, 170, 2284-2287. doi:org/10.1097/01.ju.0000095876.39932.4a

 
 
Top