Assessment of Social Participation in Three Measurement Times in Children with Traumatic Brain Injuries (TBI) Based on Parental Perceptions
Author(s)
Patrick Fougeyrollas1,2,
Céline Lepage1,2,
Lucie Boissière1,
Isabelle Deaudelin1,
Louis Doré
Affiliation(s)
1 Rehabilitation Institute of Quebec City (IRDPQ), Quebec City, Canada. 2 Centre for Interdisciplinary Research on Rehabilitation and Social Integration (CIRRIS), Quebec City, Canada.
1 Rehabilitation Institute of Quebec City (IRDPQ), Quebec City, Canada. 2 Centre for Interdisciplinary Research on Rehabilitation and Social Integration (CIRRIS), Quebec City, Canada.
ABSTRACT
Purpose: The aim of this study was to measure social participation in children with traumatic brain injuries (TBI) on their parental perceptions, retrospectively for the pre-injury period, at the beginning of rehabilitation and one year after return to school. Methods: This study was conducted among 17 children aged 5 to 17 years old with moderate or severe TBI and their parents. Social participation was assessed using the LIFE-H for Children (1.0). Results: A significant decrease (p ≤ 0.001) in the level of accomplishment of life habits was found for all categories between the measurements taken pre-injury and at the beginning of rehabilitation. Significant differences (p ≤ 0.002) related to the increase in the life habit accomplishment scores were also found between measurements taken at the beginning of rehabilitation and one year after return to school. Conclusion: TBI significantly affected the accomplishment of life habits of the participants compared to their pre-injury level. The assessment of social participation at various times provides a report on the client’s progress and allows clinicians to update his or her intervention plan, to plan follow-ups or to end the intervention. This knowledge must be considered by anyone involved in helping these children to achieve their greatest social participation.
Purpose: The aim of this study was to measure social participation in children with traumatic brain injuries (TBI) on their parental perceptions, retrospectively for the pre-injury period, at the beginning of rehabilitation and one year after return to school. Methods: This study was conducted among 17 children aged 5 to 17 years old with moderate or severe TBI and their parents. Social participation was assessed using the LIFE-H for Children (1.0). Results: A significant decrease (p ≤ 0.001) in the level of accomplishment of life habits was found for all categories between the measurements taken pre-injury and at the beginning of rehabilitation. Significant differences (p ≤ 0.002) related to the increase in the life habit accomplishment scores were also found between measurements taken at the beginning of rehabilitation and one year after return to school. Conclusion: TBI significantly affected the accomplishment of life habits of the participants compared to their pre-injury level. The assessment of social participation at various times provides a report on the client’s progress and allows clinicians to update his or her intervention plan, to plan follow-ups or to end the intervention. This knowledge must be considered by anyone involved in helping these children to achieve their greatest social participation.
Cite this paper
Fougeyrollas, P. , Lepage, C. , Boissière, L. , Deaudelin, I. and Doré, L. (2014) Assessment of Social Participation in Three Measurement Times in Children with Traumatic Brain Injuries (TBI) Based on Parental Perceptions. Open Journal of Therapy and Rehabilitation, 2, 156-165. doi: 10.4236/ojtr.2014.24021.
Fougeyrollas, P. , Lepage, C. , Boissière, L. , Deaudelin, I. and Doré, L. (2014) Assessment of Social Participation in Three Measurement Times in Children with Traumatic Brain Injuries (TBI) Based on Parental Perceptions. Open Journal of Therapy and Rehabilitation, 2, 156-165. doi: 10.4236/ojtr.2014.24021.
References
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[1] Coster, W. and Alunkal-Khetani, M. (2008) Measuring Participation of Children with Disabilities: Issues and Challenges. Disability and Rehabilitation, 30, 639-648. [2] Imms, C. (2008) Children with Cerebral Palsy Participate: A Review of the Literature. Disability and Rehabilitation, 30, 1867-1884. http://dx.doi.org/10.1080/09638280701673542 [3] Law, M. (2002) Enhancing Participation. Physical & Occupational Therapy in Pediatrics, 22, 103.
http://dx.doi.org/10.1080/J006v22n01_01 [4] Simeonsson, R.J., Carlson, D., Huntington, G.S., Sturtz-McLillen, J. and Lytle-Brent, J. (2001) Students with Disabilities: ANational Survey of Participation in School Activities. Disability and Rehabilitation, 23, 49-63. http://dx.doi.org/10.1080/096382801750058134 [5] Fougeyrollas, P., Cloutier, R., Bergeron, H., Coté, J. and St-Michel, G. (1999) Quebec Classification: Disability Creation Process. International Network on Disability Creation Process-Canadian Society on International Classification of Impairments, Disabilities and Handicaps, INDCP/CSICIDH, Quebec City. [6] Ravaud, J.F. and Fougeyrollas, P. (2005) Le concept de handicap et les classifications internationale. La convergence progressive des positions franco-québécoises. Santé, Solidarité et Société, 25, 121-127. [7] Noonan, V.K., et al. (2009) Comparing the Content of Participation Instruments Using the International Classification of Functioning, Disability and Health. Healthand Quality of Life Outcomes, 7, 93. http://dx.doi.org/10.1186/1477-7525-7-93 [8] Fougeyrollas, P. (2010) La funambule, le fil et la toile. Transformations réciproques du sens du handicap. Collection Sociétés, cultures et santé. Les Presses de l’Université Laval, Quebec City. [9] Fougeyrollas, P. (2012) Social Participation. In: Stone, J.H. and Blouin, M., Eds. International Encyclopedia of Rehabilitation, University of Buffalo, Buffalo, 9 pp.
http://cirrie.buffalo.edu/encyclopedia/pdf/en/social_participation.pdf [10] Lepage, C., Noreau, L., Bernard, M.P. and Fougeyrollas, P. (1998) Profile of Handicap Situations in Children with Cerebral Palsy. Scandinavian Journal of Rehabilitation Medicine, 30, 263-272.
http://dx.doi.org/10.1080/003655098444011 [11] Noreau, L., Lepage, C., Boissiere, L., Picard, R., Fougeyrollas, P., Mathieu, J., et al. (2007) Measuring Participation in Children with Disabilities Using the Assessment of Life Habits. Developmental Medicine and Child Neurology, 49, 666-671. http://dx.doi.org/10.1111/j.1469-8749.2007.00666.x [12] Chan, H.S.S., Lau, P.H.B., Fong, K.H., Poon, D. and Lam, C.C.C. (2005) Neuroimpairment, Activity Limitation, and Participation Restriction among Children with Cerebral Palsy in Hong Kong. Hong Kong Medical Journal, 11, 342-350. [13] Erikson, L., Welander, J. and Granlund, M. (2007) Participation in Everyday School Activities for Children with and without Disabilities. Journal of Developmental and Physical Disabilities, 19, 485-502. http://dx.doi.org/10.1007/s10882-007-9065-5 [14] Schenker, R., Coster, W. and Parush, S. (2005) Participation and Activity Performance of Students with Cerebral Palsy within the School Environment. Disability and Rehabilitation, 27, 539-552.
http://dx.doi.org/10.1080/09638280400018437 [15] Shikako-Thomas, K., Majnemer, A., Law, M. and Lach, L. (2008) Determinants of Participation in Leisure Activities in Children and Youth with Cerebral Palsy: Systematic Review. Physical & Occupational Therapy in Pediatrics, 28, 155-169. http://dx.doi.org/10.1080/01942630802031834 [16] Parkes, J., McCullough, N. and Madden, A. (2010) To What Extent Do Children with Cerebral Palsy Participate in Everyday Life Situations? Health & Social Care in the Community, 18, 304-315. [17] Donkervoort, M., Roebroeck, M., Wiegerink, D., van der Heijden-Maessen, H., Stam, H., et al. (2007) Determinants of Functioning of Adolescents and Young Adults with Cerebral Palsy. Disability and Rehabilitation, 29, 453-463. http://dx.doi.org/10.1080/09638280600836018 [18] Imms, C., Reilly, S., Carlin, J. and Dodd, K. (2008) Diversity of Participation in Children with Cerebral Palsy. Developmental Medicine and Child Neurology, 50, 363-369.
http://dx.doi.org/10.1016/j.ejpn.2008.03.005 [19] Michelsen, S.I., Flachs, E.M., Uldall, P., Eriksen, E.L., McManus, V., Parkes, J., et al. (2009) Frequency of Participation of 8-12-Year-Old Children with Cerebral Palsy: A Multi-Centre Cross-Sectional European Study. European Journal of Paediatric Neurology, 13, 165-177.
http://dx.doi.org/10.1016/j.ejpn.2008.03.005 [20] Law, M., King, G., King, S., Kertoy, M., Hurley, P., Rosenbaum, P., et al. (2006) Patterns of Participation in Recreational and Leisure Activities among Children with Complex Physical Disabilities. Developmental Medicine and Child Neurology, 48, 337-342.
http://dx.doi.org/10.1017/S0012162206000740 [21] Morris, C., Kurinczuk, J.J., Fitzpatrick, R. and Rosenbaum, P.L. (2006) Do the Abilities of Children with Cerebral Palsy Explain Their Activities and Participation? Developmental Medicine and Child Neurology, 48, 954-961. [22] Kerr, C., McDowell, B. and McDonough, S. (2006) The Relationship Between Gross Motor Function and Participation Restriction in Children with Cerebral Palsy: An Exploratory Analysis. Child: Care, Health and Development, 33, 22-27. http://dx.doi.org/10.1111/j.1365-2214.2006.00634.x [23] Bedell, G. and Coster, W. (2008) Measuring Participation of School-Aged Children with Traumatic Brain Injuries: Considerations and Approaches. Journal of Head Trauma Rehabilitation, 23, 220-229.
http://dx.doi.org/10.1097/01.HTR.0000327254.61751.e7 [24] Bedell, M.G., Haley, M.S., Coster, J.W. and Smith, W.K. (2002) Participation Readiness at Discharge from Inpatient Rehabilitation in Children and Adolescents with Acquired Brain Injuries. Pediatric Rehabilitation, 5, 102-116. [25] Bedell, M.G. (2004) Developing a Follow-Up Survey Focused on Participation of Children and Youth with Acquired Brain Injuries After Discharge from Inpatient Rehabilitation. NeuroRehabilitation, 19, 191-205. [26] Bedell, M.G., Cohn, E.S. and Dumas, H.M. (2005) Exploring Parents’ Use of Strategies to Promote Social Participation of School-Age Children with Acquired Brain Injuries. American Journal of Occupational Therapy, 59, 273-284. http://dx.doi.org/10.5014/ajot.59.3.273 [27] Dumas, H.M., Bedell, G.M. and Shannon-Hamill, M. (2003) Strategies to Promote Activity and Participation in Children and Youths with Acquired Brain Injuries. International Journal of Rehabilitation Research, 26, 303-308. http://dx.doi.org/10.1097/00004356-200312000-00008 [28] Bedell, M.G. and Dumas, H.M. (2004) Social Participation of Children and Youth with Acquired Brain Injuries Discharged from Inpatient Rehabilitation: A Follow-Up Study. Brain Injury, 18, 65-82.
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