[1] American Cancer Society (2014) Treatment and Survivorship Research.
http://www.cancer.org/research/survivaltreatmentresearch/index
[2] American Cancer Society (2013) Cancer Facts & Figures 2013. American Cancer Society, Atlanta.
[3] Eheman, C., Berkowitz, Z., Lee, J., Mohile, S., Purnell, J., Rodriguez, E.M., et al. (2009) Information-Seeking Styles among Cancer Patients before and after Treatment by Demographics and Use of Information Sources. Journal of Health Communication: International Perspectives, 14, 487-502.
http://dx.doi.org/10.1080/10810730903032945
[4] Walsh, M., Trentham-Dietz, A., Schroepfer, T.A., Reding, D.J., Campbell, B., Foote, M.L., et al. (2010) Cancer Information Sources Used by Patients to Inform and Influence Treatment Decisions. Journal of Health Communication: International Perspectives, 15, 445-463.
http://dx.doi.org/10.1080/10810731003753109
[5] Adler, N. and Page, A. (2008) Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. The National Academies Press, Washington DC.
[6] Hawkins, N., Pollack, L.A., Leadbetter, S., Steele, W.R., Carroll, J., Dolan, J.G., et al. (2008) Informational Needs of Patients and Perceived Adequacy of Information Available before and after Treatment of Cancer. Journal of Psychosocial Oncology, 26, 1-16.
http://dx.doi.org/10.1300/J077v26n02_01
[7] Puts, M., et al. (2012) A Systematic Review of Unmet Needs of Newly Diagnosed Older Cancer Patients Undergoing Active Cancer Treatment. Supportive Care in Cancer, 20, 1377-1394.
[8] Posma, E., van Weert, J.C.M., Jansen, J. and Bensing, J.M. (2009) Older Cancer Patients’ Information and Support Needs Surrounding Treatment: An Evaluation through the Eyes of Patients, Relatives, and Professionals. BMC Nursing, 8, 1.
http://dx.doi.org/10.1186/1472-6955-8-1
[9] (2007) Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs.
http://www.iom.edu/Reports/2007/Cancer-Care-for-the-Whole-Patient-Meeting-Psychosocial-Health-Needs.aspx
[10] (2013) NCCN Guidelines.
http://www.nccn.org/professionals/physician_gls/f_guidelines.asp
[11] (2013) Cancer Program Standards 2012, Version 1.2: Ensuring Patient-Centered Care.
http://www.facs.org/cancer/coc/programstandards2012.html
[12] Marcusen, C. (2010) Information and Communication Needs of Individuals Living with Advanced Cancer. Seminars in Oncology Nursing, 26, 151-156.
http://dx.doi.org/10.1016/j.soncn.2010.05.006
[13] Im, E.O., Chee, W., Guevara, E., Lim, H.J., Liu, Y. and Shin, H. (2008) Gender and Ethnic Differences in Cancer Patients’ Needs for Help: An Internet Survey. International Journal of Nursing Studies, 45, 1192-1204.
http://dx.doi.org/10.1016/j.ijnurstu.2007.09.006
[14] Klemm, P. (2008) Late Effects of Treatment for Long-Term Cancer Survivors: Qualitative Analysis of an Online Support Group. CIN: Computers, Informatics, Nursing, 26, 49-58.
http://dx.doi.org/10.1097/01.NCN.0000304753.41493.f4
[15] Fox, S. and Purcell, K. (2010) Chronic Disease and the Internet.
http://www.pewinternet.org/2010/03/24/chronic-disease-and-the-internet/
[16] Amalraj, S., Starkweather, C., Nguyen, C. and Naeim, A. (2009) Health Literacy, Communication, and Treatment Decision-Making in Older Cancer Patients. Oncology, 23, 369-375.
[17] Paul, C., Carey, M.L., Hall, A.E., Lynagh, M.C., Sanson-Fisher, R.W. and Henskens, F.A. (2011) Improving Access to Information and Support for Patients with Less Common Cancers: Hematologic Cancer Patients’ Views about Web-Based Approaches. Journal of Medical Internet Research, 13, e112.
http://dx.doi.org/10.2196/jmir.1894
[18] Jefford, M., Black, C., Grogan, S., Yeoman, G., White, V. and Akkerman, D. (2005) Information and Support Needs of Callers to the Cancer Helpline, the Cancer Council Victoria. European Journal of Cancer Care, 14, 113-123.
http://dx.doi.org/10.1111/j.1365-2354.2005.00505.x
[19] Carlsson, M. (2009) Cancer Patients Seeking Information from Sources Outside the Health Care System: Change over a Decade. European Journal of Oncology Nursing, 13, 304-305.
http://dx.doi.org/10.1016/j.ejon.2009.03.005
[20] Mayer, D., Terrin, N.C., Kreps, G.L., Menon, U., McCance, K., Parsons, S.K., et al. (2007) Cancer Survivors Information Seeking Behaviors: A Comparison of Survivors Who Do and Do Not Seek Information about Cancer. Patient Education and Counseling, 65, 342-350.
http://dx.doi.org/10.1016/j.pec.2006.08.015
[21] Reid, J. and Porter, S. (2011) Utility, Caller, and Patient Profile of a Novel Chemotherapy Telephone Helpline Service within a Regional Cancer Centre in Northern Ireland. Cancer Nursing, 34, E27-E32.
http://dx.doi.org/10.1097/NCC.0b013e318204c53c
[22] Carlsson, M., Strang, P. and Lindblad, L. (1996) Telephone Help Line for Cancer Counceling and Cancer Information. Cancer Practice, 4, 319-323.
[23] Marcus, A., Garrett, K.M., Kulchak-Rahm, A., Barnes, D., Dortch, W. and Juno, S. (2002) Telephone Counseling in Psychosocial Oncology: A Report from the Cancer Information and Counseling Line. Patient Education & Counseling, 46, 267-275.
http://dx.doi.org/10.1016/S0738-3991(01)00163-X
[24] Rainey, L. (1985) Cancer Counseling by Telephone Help-Line: The UCLA Psychosocial Cancer Counseling Line. Public Health Reports, 100, 308-315.
[25] Morra, M.E., Vevel, J., Nealon, E.O., Mazan, K.D. and Thomsen, C. (1993) History of the Cancer Information Service. Journal of the National Cancer Institute, 7-33.
[26] Carlsson, M. (2000) Cancer Patients Seeking Information from Sources Outside the Health Care System. Supportive Care in Cancer, 8, 453-457.
[27] NCI’s Cancer Information Service (CIS) (2012) http://www.cancer.gov/aboutnci/cis/page1
[28] Bernard, D., Farr, S. and Fang, Z. (2011) National Estimates of Out-of-Pocket Health Care Expenditure Burdens among Nonelderly Adults with Cancer: 2001 to 2008. Journal of Clinical Oncology, 29, 2821-2826.
http://dx.doi.org/10.1200/JCO.2010.33.0522
[29] Cunningham, P. (2009) Chronic Burdens: The Persistently High Out-of-Pocket Healthcare Expenses Faced by Many Americans with Chronic Conditions.
http://www.commonwealthfund.org/~/media/Files/Publications/Issue%20Brief/2009/Jul/Chronic%20
Burdens/1303_Cunningham_chronic_burdens_high_OOP_expenses_chronic_conditions_ib.pdf
[30] Desmond, K., et al. (2007) The Burden of Out-of-Pocket Health Spending among Older versus Younger Adults: Analysis from the Consumer Analysis Survey, 1998-2003. The Henry J. Kaiser Family Foundation.
[31] Finkelstein, E., et al. (2009) The Personal Financial Burden of Cancer for the Working-Aged Population. American Journal of Managed Care, 15, 801-806.
[32] Jayadevappa, R., Schwartz, J.S., Chhatre, S., Gallo, J.J., Wein, A.J. and Malkowicz, S.B. (2010) The Burden of Out-of-Pocket and Indirect Costs of Prostate Cancer. The Prostate, 70, 1255-1264.
http://dx.doi.org/10.1002/pros.21161
[33] Pisu, M., Azuero, A., McNees, P., Burkhardt, J., Benz, R. and Meneses, K. (2010) The Out of Pocket Cost of Breast Cancer Survivors: A Review. Journal of Cancer Survivorship, 4, 202-209.
http://dx.doi.org/10.1007/s11764-010-0125-y
[34] Yabroff, K., Lund, J., Kepka, D. and Mariotto, A. (2011) Economic Burden of Cancer in the United States: Estimates, Projections, and Future Research. Cancer Epidemiology Biomarkers & Prevention, 20, 2006-2014.
http://dx.doi.org/10.1158/1055-9965.EPI-11-0650
[35] Mathews, M. and Park, A. (2009) Identifying Patients in Financial Need: Cancer Care Providers’ Perceptions of Barriers. Clinical Journal of Oncology Nursing, 13, 501-505.
http://dx.doi.org/10.1188/09.CJON.501-505
[36] Yabroff, K., Lamont, E.B., Mariotto, A., Warren, J.L., Topor, M., Meekins, A., et al. (2008) Cost of Care for Elderly Cancer Patients in the United States. Journal of the National Cancer Institute, 100, 630-641.
http://dx.doi.org/10.1093/jnci/djn103
[37] Salz, R., Oeffinger, K.C., McCabe, M.S., Layne, T.M., and Bach, P.B. (2012) Survivorship Care Plans in Research and Practice. CA: A Cancer Journal for Clinicians, 62, 101-117.
http://dx.doi.org/10.3322/caac.20142
[38] Hewitt, M., Greenfield, S. and Stovall, E. (2005) From Cancer Patient to Cancer Survivor: Lost in Transition. Institute of Medicine and National Research Council of the National Academies, Washington DC.
[39] (2008) GACHA Annual Report 2008: Delaware Governor’s Advisory Council on Hispanic Affairs. Delaware Health and Social Services, New Castle.
[40] Ennis, S., Rios-Vargas, M. and Albert, N. (2011) The Hispanic Population: 2010. US Census Bureau.
[41] (2012) Cancer Facts and Figures for Latinos/Hispanics 2012-2014. American Cancer Society, Atlanta.
[42] Waters, E., Sullivan, H. and Rutten, L.F. (2009) Cancer Prevention Information-Seeking among Hispanic and Non Hispanic Users of the National Cancer Institute’s Cancer Information Service: Trends in Telephone and Live-Help Use. Journal of Health Communication: International Perspectives, 14, 476-486.
http://dx.doi.org/10.1080/10810730903032952
[43] McCormack, L., et al. (2013) Communication and Dissemination Strategies to Facilitate the Use of Health-Related Evidence. Evidence Report/Technology Assessment No. 213, Rockville.