Ek, K., Ternestedt, B.M., Andershed, B. and Sahlberg-Blom, E. (2011) Shifting life rhythms: Couples’ stories about living together when one spouse has advanced chronic obstructive pulmonary disease. Journal of Palliative Care, 27, 189-197.
 Gomes, B., Calanzani, N., Curiale, V., McCrone, P. and Higginson, I.J. (2013) Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database of Systematic Reviews, 6, Article ID: CD007760. doi:10.1002/14651858.CD007760.pub2
 Stajduhar, K., Funk, L., Toye, C., Grande, G., Aoun, S. and Todd, C. (2010) Part 1: Home-based family caregiving at the end of life: A comprehensive review of published quantitative research (1998-2008). Palliative Medicine, 24, 573-593. doi:10.1177/0269216310371412
 Funk, L., Stajduhar, K., Toye, C., Aoun, S., Grande, G. and Todd, C. (2010) Part 2: Home-based family caregiving at the end of life: A comprehensive review of published qualitative research (1998-2008). Palliative Medicine, 24, 594-607. doi:10.1177/0269216310371411
 Andershed, B. (2006) Relatives in end-of-life care—Part 1: A systematic review of the literature the five last years, January 1999-February 2004. Journal of Clinical Nursing, 15, 1158-1169. doi:10.1111/j.1365-2702.2006.01473.x
 Wells, J.N., Cagle, C.S., Bradley, P. and Barnes, D.M. (2008) Voices of Mexican American caregivers for family members with cancer: On becoming stronger. Journal of Transcultural Nursing, 19, 223-233. doi:10.1177/1043659608317096
 Carlander, I., Sahlberg-Blom, E., Hellstrom, I. and Ternestedt, B.M. (2011) The modified self: Family caregivers’ experiences of caring for a dying family member at home. Journal of Clinical Nursing, 20, 1097-1105. doi:10.1111/j.1365-2702.2010.03331.x
 Browall, M., Melin-Johansson, C., Strang, S., Danielson, E. and Henoch, I. (2010) Health care staff’s opinions about existential issues among patients with cancer. Palliative & Supportive Care, 8, 59-68. doi:10.1017/S147895150999071X
 Koffman, J., Morgan, M., Edmonds, P., Speck, P. and Higginson, I.J. (2012) “The greatest thing in the world is the family”: The meaning of social support among black Caribbean and white British patients living with advanced cancer. Psycho-Oncology, 21, 400-408. doi:10.1002/pon.1912
 Arnold, B.L. (2011) Mapping hospice patients’ perception and verbal communication of end-of-life needs: An exploratory mixed methods inquiry. BMC Palliative Care, 10, 1. doi:10.1186/1472-684X-10-1
 Carlander, I., Ternestedt, B.M., Sahlberg-Blom, E., Hellstrom, I. and Sandberg, J. (2010) Being me and being us in a family living close to death at home. Qualitative Health Research, 21, 683-695.
 Jo, S., Brazil, K., Lohfeld, L. and Willison, K. (2007) Caregiving at the end of life: Perspectives from spousal caregivers and care recipients. Palliative & Supportive Care, 5, 11-17. doi:10.1017/S1478951507070034
 Carlander, I., Ternestedt, B.M., Sahlberg-Blom, E., Hellstrom, I. and Sandberg, J. (2011) Being me and being us in a family living close to death at home. Qualitative Health Research, 21, 683-695. doi:10.1177/1049732310396102
 Midtgaard, J., Rorth, M., Stelter, R. and Adamsen, L. (2006) The group matters: An explorative study of group cohesion and quality of life in cancer patients participating in physical exercise intervention during treatment. European Journal of Cancer Care, 15, 25-33.
 Stoltz, P., Lindholm, M., Uden, G. and Willman, A. (2006) The meaning of being supportive for family caregivers as narrated by registered nurses working in palliative homecare. Nursing Science Quarterly, 19, 163-173.
 Milberg, A. and Strang, P. (2007) What to do when “there is nothing more to do”? A study within a salutogenic framework of family members’ experience of palliative home care staff. Psycho-Oncology, 16, 741-751. doi:10.1002/pon.1124
 Brannstrom, M., Ekman, I., Boman, K. and Strandberg, G. (2007) Narratives of a man with severe chronic heart failure and his wife in palliative advanced home care over a 4.5-year period. Contemporary Nurse, 27, 10-22.
 Milberg, A. and Strang, P. (2004) Exploring comprehensibility and manageability in palliative home care: An interview study of dying cancer patients’ informal carers. Psycho-Oncology, 13, 605-618. doi:10.1002/pon.774
 Dale, B., Saevareid, H.I., Kirkevold, M. and Soderhamn, O. (2010) Older home nursing patients’ perception of social provisions and received care. Scandinavian Journal of Caring Sciences, 24, 523-532.
 Nilsson, B., Lindstrom, U.A. and Naden, D. (2006) Is loneliness a psychological dysfunction? A literary study of the phenomenon of loneliness. Scandinavian Journal of Caring Sciences, 20, 93-101.
 Thorne, S., Kirkham, S.R. and MacDonald-Emes, J. (1997) Interpretive description: A noncategorical qualitative alternative for developing nursing knowledge. Research in Nursing & Health, 20, 169-177. doi:10.1002/(SICI)1098-240X(199704)20:2<169::AID-NUR9>3.0.CO;2-I
 Waldrop, D.P., Kramer, B.J., Skretny, J.A., Milch, R.A. and Finn, W. (2005) Final transitions: Family caregiving at the end of life. Journal of Palliative Medicine, 8, pp. 623-638. doi:10.1089/jpm.2005.8.623
 Grothe, T.T., Rydahl, H.S. and Wagner, L.I. (2012) Prioritising, downpalying and self-preservation: Processess significant to coping in advanced cancer patients. Open Journal of Nursing, 2, 48-57. doi:10.4236/ojn.2012.22009
 Meleis, A.I. (2010) Theoretical development of transistions. In: Meleis, A.I., Ed., Transition Theory Middlerange and Situation-Specific Theories in Nursing Research and Practice, Springer Publishing Company, New York, 13-51.
 Milberg, A. and Strang, P. (2003) Meaningfulness in palliative home care: An interview study of dying cancer patients’ next of kin. Palliative & Supportive Care, 1, 171-180. doi:10.1017/S1478951503030311
 Hollman, G., Ek, A.C., Olsson, A.G. and Bertero, C. (2004) Meaning of quality of life among patients with familial hypercholesterolemia. Journal of Cardiovascular Nursing, 19, 243-250. doi:10.1097/00005082-200407000-00004
 Kirk, P., Kirk, I. and Kristjanson, L.J. (2004) What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. British Medical Journal, 328, 1343.
 Benzar, E., Hansen, L., Kneitel, A.W. and Fromme, E.K. (2011) Discharge planning for palliative care patients: A qualitative analysis. Journal of Palliative Medicine, 14, 65-69. doi:10.1089/jpm.2010.0335
 Sahlberg-Blom, E., Ternestedt, B.M. and Johansson, J.E. (2001) Is good “quality of life” possible at the end of life? An explorative study of the experiences of a group of cancer patients in two different care cultures. Journal of Clinical Nursing, 10, 550-562. doi:10.1046/j.1365-2702.2001.00511.x